PEACE – Patient satisfaction and shared decision making in end of life care
Summary
PEACE – Patient satisfaction and shared decision making in end of life care. A study of gynecological cancer patients and their carers (GCIG SB-001/NSGO-CTU-PEACE)
End of life care in gynecological cancer patients is characterized by overtreatment and lack of integration of palliative care. PEACE will generate in depth knowledge on patient´s and carer´s expectations and satisfaction with end of life care. Moreover, our hypothesis is that understanding the patient and carer perception of SDM in EOL car is a prerequisite when we aim for improved patients centered EOL care.
PREMS (Patient-Reported Experience Measures) will be collected with questionnaires every eight weeks and upon trigger events (i.e., hospital admission, progressive treatment). They are collected with a novel, electronic platform called “Cankado”. The questionnaire data collected in PEACE will study data on the CANHELP lite domains «communication» and «decision making» in the patient version. This data will be prospectively collected every 8 weeks and at trigger events (acute hospital admissions, at progression). Among caregivers, we will utilize collected data on the CANHELP carer lite domains “decision making” as well as «caregiver´s involvement» in the carer version of the CANHELP questionnaires. Questionnaire data on satisfaction with care will be collected from patients and their appointed caregivers. Patterns of care (i.e., administration of chemotherapy, surgical interventions, palliative care involvement) will be prospectively collected.
The knowledge generated in PEACE will be crucial when implementing interventions to avoid complex anti-cancer treatment towards end of life. Assessment of patients’ preferences will guide health care resources including community services to where patients and their carers need it the most. The study will enable us to increase shared decision-making and thereby enhance patient physician communication and facilitate integration of palliative care.
Collaboration:
PEACE is an international multicenter collaborative study between NSGO (Nordic Society of Gynecological Oncology) and ANZGOG (Australian New Zealand Gynecological Oncology Group).
Participating centers:
NSGO:
University Hospital Oslo, Norway, PI: Kristina Lindemann
University Hospital Tromsø, PI: Anne Marie Hansson
Stavanger University Hospital, PI: Elisabeth Berge Nilsen
Hospital Southern Norway, PI: Ingvild Vistad
St. Olav’s Hospital, PI: Guro Aune
ANZGOG:
The Canberra Hospital, Canberra, PI: Alison Davis
Newcastle Private Hospital, Newcastle, PI: Janine Lombard
Chris O'Brien Lifehouse, Sydney, PI: Yeh Chen Lee