Latest publications Department of Rare Disorders and Disabilities

Ullmann Miller J, Fauske L, Sigurdardottir S, Arfa S, von der Lippe C (2025)
'In the dark': parents' lifelong commitment to supporting children with Bardet-Biedl syndrome
Health Psychol Behav Med, 13 (1), 2467432
DOI 10.1080/21642850.2025.2467432, PubMed 39968158

Feragen KJB, Egedal S, Kjolaas SH (2025)
Navigating competing needs: a qualitative study on parenthood with a partner with Huntington's disease
Health Psychol Behav Med, 13 (1), 2465614
DOI 10.1080/21642850.2025.2465614, PubMed 39968157

Stock NM, Herring B, Magee L, Johns AL, Crerand CE, Heike CL, Schefer A, Drake AF, Tumblin M, Feragen KB (2025)
Surgical decision-making regarding hearing and ear reconstruction in craniofacial microsomia: Exploring caregiver narratives
J Craniomaxillofac Surg (in press)
DOI 10.1016/j.jcms.2025.01.019, PubMed 39947979