Publications 2025

Feragen KJB, Egedal S, Kjolaas SH (2025)
Navigating competing needs: a qualitative study on parenthood with a partner with Huntington's disease
Health Psychol Behav Med, 13 (1), 2465614
DOI 10.1080/21642850.2025.2465614, PubMed 39968157

Publications 2024

Kling J, Billaud Feragen K (2024)
Experiences of appearance conversations among young people living with a visible difference
Body Image, 49, 101699
DOI 10.1016/j.bodyim.2024.101699, PubMed 38489964

Mediå LM, Fauske L, Sigurdardottir S, Billaud Feragen KJ, Waehre A (2024)
Differences of sex development and surgical decisions: focus group interviews with health care professionals in Norway
Health Psychol Behav Med, 12 (1), 2371134
DOI 10.1080/21642850.2024.2371134, PubMed 38979393

Stock NM, Costa B, Parnell J, Johns AL, Crerand CE, Billaud Feragen K, Stueckle LP, Mills A, Magee L, Hotton M, Tumblin M, Schefer A, Drake AF, Heike CL (2024)
A Conceptual Thematic Framework of Psychological Adjustment in Caregivers of Children with Craniofacial Microsomia
Cleft Palate Craniofac J, 10556656241245284 (in press)
DOI 10.1177/10556656241245284, PubMed 38584503

Publications 2023

Lindberg NE, Kynø NM, Billaud Feragen K, Pripp AH, Tønseth KA (2023)
Early Follow-up of Parents by a Specialized Cleft Nurse After the Birth of an Infant with Cleft lip and/or Palate
Cleft Palate Craniofac J, 61 (8), 1369-1382
DOI 10.1177/10556656231171750, PubMed 37151047

Millgård M, Myhre A, Due-Tønnessen BJ, Billaud Feragen KJ (2023)
Parents' Perception of the Benefit of Receiving a Patient Information Leaflet Prior to Attending a Craniofacial Multidisciplinary Team Appointment
Cleft Palate Craniofac J, 62 (3), 527-533
DOI 10.1177/10556656231219579, PubMed 38092729

Zelihić D, Feragen KJB, Pripp AH, Nordgreen T, Williamson H, Kling J (2023)
Predictors of Adolescents' Response to a Web-Based Intervention to Improve Psychosocial Adjustment to Having an Appearance-Affecting Condition (Young Person's Face IT): Prospective Study
JMIR Form Res, 7, e35669
DOI 10.2196/35669, PubMed 36652281

Publications 2022

Johns AL, Stock NM, Costa B, Billaud Feragen K, Crerand CE (2022)
Psychosocial and Health-Related Experiences of Individuals With Microtia and Craniofacial Microsomia and Their Families: Narrative Review Over 2 Decades
Cleft Palate Craniofac J, 60 (9), 1090-1112
DOI 10.1177/10556656221091699, PubMed 35382590

Mediå LM, Fauske L, Sigurdardottir S, Feragen KJB, Heggeli C, Wæhre A (2022)
'It was Supposed to be a Secret': a study of disclosure and stigma as experienced by adults with differences of sex development
Health Psychol Behav Med, 10 (1), 579-595
DOI 10.1080/21642850.2022.2102018, PubMed 35898596

Publications 2021

Feragen KJB, Myhre A, Stock NM (2021)
"Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference
Qual Health Res, 32 (1), 3-15
DOI 10.1177/10497323211039205, PubMed 34596475

Grimstvedt TN, Miller JU, van Walsem MR, Feragen KJB (2021)
Speech and language difficulties in Huntington's disease: A qualitative study of patients' and professional caregivers' experiences
Int J Lang Commun Disord, 56 (2), 330-345
DOI 10.1111/1460-6984.12604, PubMed 33577706

Myhre A, Råbu M, Feragen KJB (2021)
The need to belong: Subjective experiences of living with craniofacial conditions and undergoing appearance-altering surgery
Body Image, 38, 334-345
DOI 10.1016/j.bodyim.2021.05.008, PubMed 34087543

Publications 2020

Umbaugh HM, Crerand CE, Stock NM, Luquetti DV, Heike CL, Drake AF, Billaud Feragen KJ, Johns AL (2020)
Microtia and craniofacial microsomia: Content analysis of facebook groups
Int J Pediatr Otorhinolaryngol, 138, 110301
DOI 10.1016/j.ijporl.2020.110301, PubMed 32838996

Publications 2019

Andersen JB, Midttun K, Feragen KJB (2019)
Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL)
J Patient Rep Outcomes, 3 (1), 15
DOI 10.1186/s41687-019-0101-x, PubMed 30806830

Billaud Feragen K, Myhre A, Stock NM (2019)
"Exposed and Vulnerable": Parent Reports of Their Child's Experience of Multidisciplinary Craniofacial Consultations
Cleft Palate Craniofac J, 56 (9), 1230-1238
DOI 10.1177/1055665619851650, PubMed 31142141

Impieri D, Tønseth KA, Hide Ø, Feragen KJB, Høgevold HE, Filip C (2019)
Autologous fat transplantation to the velopharynx for treating mild velopharyngeal insufficiency: A 10-year experience
J Plast Reconstr Aesthet Surg, 72 (8), 1403-1410
DOI 10.1016/j.bjps.2019.03.040, PubMed 31103609

Publications 2018

Iversen K, Drivdal LM, Billaud Feragen KJ, Geirdal AØ (2018)
Quality of life in adults with lymphedema cholestasis syndrome 1
Health Qual Life Outcomes, 16 (1), 146
DOI 10.1186/s12955-018-0972-1, PubMed 30045736

Solberg OK, Filkuková P, Frich JC, Feragen KJB (2018)
Age at Death and Causes of Death in Patients with Huntington Disease in Norway in 1986-2015
J Huntingtons Dis, 7 (1), 77-86
DOI 10.3233/JHD-170270, PubMed 29480207

Publications 2014

van Nunen DP, Filip C, Feragen KJ, van den Boogaard MJ, Breugem CC (2014)
Reaction to: Persson et al. Educational achievements in Pierre Robin sequence. J Plast Surg Hand Surg 2013;47(1):36-9
J Plast Surg Hand Surg, 48 (4), 287-8
DOI 10.3109/2000656X.2014.924956, PubMed 24909823