• Lena Lande Wekre, MD, PhD, Norwegian National Advisory Unit on Rare Diseases
  • Cecilie Rustad, MD, Dept. of Medical Genetics, OUH
  • Cathrine Alsaker Heier, Div. of Pediatrics, Endocrinology
  • The Intervention Centre, OUH
  • Ida Rashida Khan Bukholm, MD, Professor,
  • Norwegian University of Life Science, The Norwegian System of Patient Injury Compensation


  • Ralph Sakkers, MD, PhD; EPOS Study Group Genetics and Metabolic Diseases
  • International Perthes Study Group
  • European Reference Network for rare Bone Disorders (ERN BOND)
  • Nordic Limb Lengthening and Reconstruction Society
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