Publications 2024

Dobrota R, Garaiman A, Fligelstone K, Tyrrell Kennedy A, Roennow A, Allanore Y, Carreira PE, Czirják L, Denton C, Hesselstrand R, Sandqvist G, Kowal-Bielecka O, Bruni C, Matucci-Cerinic M, Mihai C, Gherghe AM, Mueller-Ladner U, Kvien T, Heiberg T, Distler O, Becker MO (2024)
Performance of the EULAR Systemic sclerosis Impact of Disease (ScleroID) questionnaire as a patient-reported outcome measure for patients with diffuse systemic sclerosis
RMD Open, 10 (4)
DOI 10.1136/rmdopen-2024-004653, PubMed 39608865

Publications 2023

Wevling A, Olsen BF, Nygaard AM, Heiberg T (2023)
Knowledge and Awareness of Non-Technical Skills Over the Course of an Educational Program in Nursing - A Repeated Cross-Sectional Study
Adv Med Educ Pract, 14, 31-41
DOI 10.2147/AMEP.S379341, PubMed 36647513

Publications 2021

Becker MO, Dobrota R, Garaiman A, Debelak R, Fligelstone K, Tyrrell Kennedy A, Roennow A, Allanore Y, Carreira PE, Czirják L, Denton CP, Hesselstrand R, Sandqvist G, Kowal-Bielecka O, Bruni C, Matucci-Cerinic M, Mihai C, Gheorghiu AM, Mueller-Ladner U, Sexton J, Kvien TK, Heiberg T, Distler O (2021)
Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire
Ann Rheum Dis, 81 (4), 507-515
DOI 10.1136/annrheumdis-2021-220702, PubMed 34824049

Publications 2020

Duarte C, Santos E, da Silva JAP, Kristianslund EK, Kvien TK, Dougados M, de Wit M, Gossec L, Heiberg T (2020)
The Patient Experienced Symptom State (PESS): a patient-reported global outcome measure that may better reflect disease remission status
Rheumatology (Oxford), 59 (11), 3458-3467
DOI 10.1093/rheumatology/keaa149, PubMed 32375173

Publications 2019

Heiberg T, Baekelandt B, Kvien TK, Buanes T (2019)
Psychometric performance of the PAncreatic CAncer disease impact (PACADI) score
Pancreatology, 19 (7), 971-978
DOI 10.1016/j.pan.2019.09.001, PubMed 31530448

Jelin E, Wisløff T, Jørstad ØK, Heiberg T, Moe MC (2019)
Patient-reported outcome measures in the management of neovascular age-related macular degeneration: a 1-year prospective study
BMJ Open Ophthalmol, 4 (1), e000353
DOI 10.1136/bmjophth-2019-000353, PubMed 31673632

Jelin E, Wisløff T, Moe MC, Heiberg T (2019)
Psychometric properties of the National Eye Institute Visual Function Questionnaire (NEI-VFQ 25) in a Norwegian population of patients with neovascular age-related macular degeneration compared to a control population
Health Qual Life Outcomes, 17 (1), 140
DOI 10.1186/s12955-019-1203-0, PubMed 31412873

Wevling A, Alesve C, Nygaard AM, Gunheim-Hatland L, Hoyum GM, Heiberg T (2019)
Understanding Non-Technical Skills (NTS) in Emergency-, Intensive care and Perioperative Nursing (EIP)
Nordisk Sygeplejeforskning, 9 (3), 201-212
DOI 10.18261/issn.1892-2686-2019-03-05

Publications 2018

Baekelandt BMG, Fagerland MW, Hjermstad MJ, Heiberg T, Labori KJ, Buanes TA (2018)
Survival, Complications and Patient Reported Outcomes after Pancreatic Surgery
HPB (Oxford), 21 (3), 275-282
DOI 10.1016/j.hpb.2018.07.023, PubMed 30120002

Jelin E, Wisløff T, Moe MC, Heiberg T (2018)
Development and testing of a patient-derived questionnaire for treatment of neovascular age-related macular degeneration: dimensions of importance in treatment of neovascular age-related macular degeneration
Acta Ophthalmol, 96 (8), 804-811
DOI 10.1111/aos.13847, PubMed 30198182

Schippert AC, Jelin E, Moe MC, Heiberg T, Grov EK (2018)
The Impact of Age-Related Macular Degeneration on Quality of Life and Its Association With Demographic Data: Results From the NEI VFQ-25 Questionnaire in a Norwegian Population
Gerontol Geriatr Med, 4, 2333721418801601
DOI 10.1177/2333721418801601, PubMed 30263908

Publications 2017

Desthieux C, Granger B, Balanescu AR, Balint P, Braun J, Canete JD, Heiberg T, Helliwell PS, Kalyoncu U, Kvien TK, Kiltz U, Niedermayer D, Otsa K, Scrivo R, Smolen J, Stamm TA, Veale DJ, de Vlam K, de Wit M, Gossec L (2017)
Determinants of Patient-Physician Discordance in Global Assessment in Psoriatic Arthritis: A Multicenter European Study
Arthritis Care Res (Hoboken), 69 (10), 1606-1611
DOI 10.1002/acr.23172, PubMed 27998026

Puyraimond-Zemmour D, Etcheto A, Fautrel B, Balanescu A, de Wit M, Heiberg T, Otsa K, Kvien TK, Dougados M, Gossec L (2017)
Associations Between Five Important Domains of Health and the Patient Acceptable Symptom State in Rheumatoid Arthritis and Psoriatic Arthritis: A Cross-Sectional Study of 977 Patients
Arthritis Care Res (Hoboken), 69 (10), 1504-1509
DOI 10.1002/acr.23176, PubMed 27998030

Publications 2016

Gudu T, Etcheto A, de Wit M, Heiberg T, Maccarone M, Balanescu A, Balint PV, Niedermayer DS, Cañete JD, Helliwell P, Kalyoncu U, Kiltz U, Otsa K, Veale DJ, de Vlam K, Scrivo R, Stamm T, Kvien TK, Gossec L (2016)
Fatigue in psoriatic arthritis - a cross-sectional study of 246 patients from 13 countries
Joint Bone Spine, 83 (4), 439-43
DOI 10.1016/j.jbspin.2015.07.017, PubMed 27055727

Publications 2015

Baekelandt BM, Hjermstad MJ, Nordby T, Fagerland MW, Kure EH, Heiberg T, Buanes T, Labori KJ (2015)
Preoperative cognitive function predicts survival in patients with resectable pancreatic ductal adenocarcinoma
HPB (Oxford), 18 (3), 247-54
DOI 10.1016/j.hpb.2015.09.004, PubMed 27017164

Tälli S, Etcheto A, Fautrel B, Balanescu A, Braun J, Cañete JD, de Vlam K, de Wit M, Heiberg T, Helliwell P, Kalyoncu U, Kiltz U, Maccarone M, Niedermayer D, Otsa K, Scrivo R, Smolen JS, Stamm T, Veale DJ, Kvien TK, Gossec L (2015)
Patient global assessment in psoriatic arthritis - what does it mean? An analysis of 223 patients from the Psoriatic arthritis impact of disease (PsAID) study
Joint Bone Spine, 83 (3), 335-40
DOI 10.1016/j.jbspin.2015.06.018, PubMed 26677994

Publications 2014

Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, Maccarone M, Carton L, Otsa K, Sooäär I, Heiberg T, Bertheussen H, Cañete JD, Sánchez Lombarte A, Balanescu A, Dinte A, de Vlam K, Smolen JS, Stamm T, Niedermayer D, Békés G, Veale D, Helliwell P, Parkinson A, Luger T et al. (2014)
A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative
Ann Rheum Dis, 73 (6), 1012-9
DOI 10.1136/annrheumdis-2014-205207, PubMed 24790067

Tugwell P, Boers M, D'Agostino MA, Beaton D, Boonen A, Bingham CO, Choy E, Conaghan PG, Dougados M, Duarte C, Furst DE, Guillemin F, Gossec L, Heiberg T, van der Heijde DM, Hewlett S, Kirwan JR, Kvien TK, Landewé RB, Mease PJ, Østergaard M, Simon L, Singh JA, Strand V, Wells G (2014)
Updating the OMERACT filter: implications of filter 2.0 to select outcome instruments through assessment of "truth": content, face, and construct validity
J Rheumatol, 41 (5), 1000-4
DOI 10.3899/jrheum.131310, PubMed 24692531

Publications 2013

Heiberg T, Nordby T, Kvien TK, Buanes T (2013)
Development and preliminary validation of the pancreatic cancer disease impact score
Support Care Cancer, 21 (6), 1677-84
DOI 10.1007/s00520-012-1713-3, PubMed 23314652

Nordby T, Ikdahl T, Bowitz Lothe IM, Fagerland MW, Heiberg T, Hauge T, Labori KJ, Buanes T (2013)
Improved survival and quality of life in patients undergoing R1 pancreatic resection compared to patients with locally advanced unresectable pancreatic adenocarcinoma
Pancreatology, 13 (2), 180-5
DOI 10.1016/j.pan.2013.01.003, PubMed 23561977

Publications 2011

Gossec L, Paternotte S, Aanerud GJ, Balanescu A, Boumpas DT, Carmona L, de Wit M, Dijkmans BA, Dougados M, Englbrecht M, Gogus F, Heiberg T, Hernandez C, Kirwan JR, Mola EM, Cerinic MM, Otsa K, Schett G, Scholte-Voshaar M, Sokka T, von Krause G, Wells GA, Kvien TK (2011)
Finalisation and validation of the rheumatoid arthritis impact of disease score, a patient-derived composite measure of impact of rheumatoid arthritis: a EULAR initiative
Ann Rheum Dis, 70 (6), 935-42
DOI 10.1136/ard.2010.142901, PubMed 21540201

Heiberg T, Austad C, Kvien TK, Uhlig T (2011)
Performance of the Rheumatoid Arthritis Impact of Disease (RAID) score in relation to other patient-reported outcomes in a register of patients with rheumatoid arthritis
Ann Rheum Dis, 70 (6), 1080-2
DOI 10.1136/ard.2010.143032, PubMed 21378406

Kirwan JR, Fries JF, Hewlett SE, Osborne RH, Newman S, Ciciriello S, van de Laar MA, Dures E, Minnock P, Heiberg T, Sanderson TC, Flurey CA, Leong AL, Montie P, Richards P (2011)
Patient perspective workshop: moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes
J Rheumatol, 38 (8), 1711-5
DOI 10.3899/jrheum.110391, PubMed 21807790

van Eijk-Hustings Y, van Tubergen A, Boström C, Braychenko E, Buss B, Felix J, Firth J, Hammond A, Harston B, Hernandez C, Huzjak M, Korandová J, Kukkurainen ML, Landewé R, Mezieres M, Milincovic M, Moretti A, Oliver S, Primdahl J, Scholte-Voshaar M, de la Torre-Aboki J, Waite-Jones J, Westhovens R, Zangi HA, Heiberg T et al. (2011)
EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis
Ann Rheum Dis, 71 (1), 13-9
DOI 10.1136/annrheumdis-2011-200185, PubMed 22039168

Publications 2010

Heiberg T, Lie E, van der Heijde D, Kvien TK (2010)
Sleep problems are of higher priority for improvement for patients with ankylosing spondylitis than for patients with other inflammatory arthropathies
Ann Rheum Dis, 70 (5), 872-3
DOI 10.1136/ard.2010.133793, PubMed 21109522

Publications 2009

Smedslund G, Mowinckel P, Heiberg T, Kvien TK, Hagen KB (2009)
Does the weather really matter? A cohort study of influences of weather and solar conditions on daily variations of joint pain in patients with rheumatoid arthritis
Arthritis Rheum, 61 (9), 1243-7
DOI 10.1002/art.24729, PubMed 19714599

Publications 2008

Gossec L, Dougados M, Rincheval N, Balanescu A, Boumpas DT, Canadelo S, Carmona L, Daurès JP, de Wit M, Dijkmans BA, Englbrecht M, Gunendi Z, Heiberg T, Kirwan JR, Mola EM, Matucci-Cerinic M, Otsa K, Schett G, Sokka T, Wells GA, Aanerud GJ, Celano A, Dudkin A, Hernandez C, Koutsogianni K et al. (2008)
Elaboration of the preliminary Rheumatoid Arthritis Impact of Disease (RAID) score: a EULAR initiative
Ann Rheum Dis, 68 (11), 1680-5
DOI 10.1136/ard.2008.100271, PubMed 19054825

Heiberg T (2008)
Outcome assessment in rheumatoid arthritis: the patient perspective
In Series of dissertations submitted to the Faculty of Medicine, University of Oslo, Unipub, Oslo, no. 676, 1 b. (flere pag.)
BIBSYS 082534594, ISBN 978-82-8072-907-1

Mowinckel P, Hagen KB, Heiberg T, Kvien TK (2008)
Repeated measures in rheumatoid arthritis reduced the required sample size in a two-armed clinical trial
J Clin Epidemiol, 61 (9), 940-4
DOI 10.1016/j.jclinepi.2007.12.004, PubMed 18538992

Uhlig T, Heiberg T, Mowinckel P, Kvien TK (2008)
Rheumatoid arthritis is milder in the new millennium: health status in patients with rheumatoid arthritis 1994-2004
Ann Rheum Dis, 67 (12), 1710-5
DOI 10.1136/ard.2007.084673, PubMed 18218667

Publications 2007

Heiberg T, Kvien TK, Dale Ø, Mowinckel P, Aanerud GJ, Songe-Møller AB, Uhlig T, Hagen KB (2007)
Daily health status registration (patient diary) in patients with rheumatoid arthritis: a comparison between personal digital assistant and paper-pencil format
Arthritis Rheum, 57 (3), 454-60
DOI 10.1002/art.22613, PubMed 17394232

Heiberg T, Kvien TK, Mowinckel P, Aletaha D, Smolen JS, Hagen KB (2007)
Identification of disease activity and health status cut-off points for the symptom state acceptable to patients with rheumatoid arthritis
Ann Rheum Dis, 67 (7), 967-71
DOI 10.1136/ard.2007.077503, PubMed 17965118

Kvien TK, Heiberg T, Hagen KB (2007)
Minimal clinically important improvement/difference (MCII/MCID) and patient acceptable symptom state (PASS): what do these concepts mean?
Ann Rheum Dis, 66 Suppl 3 (Suppl 3), iii40-1
DOI 10.1136/ard.2007.079798, PubMed 17934093

Publications 2006

Hewlett S, Wit Md, Richards P, Quest E, Hughes R, Heiberg T, Kirwan J (2006)
Patients and professionals as research partners: challenges, practicalities, and benefits
Arthritis Rheum, 55 (4), 676-80
DOI 10.1002/art.22091, PubMed 16874772

Publications 2005

Heiberg T, Finset A, Uhlig T, Kvien TK (2005)
Seven year changes in health status and priorities for improvement of health in patients with rheumatoid arthritis
Ann Rheum Dis, 64 (2), 191-5
DOI 10.1136/ard.2004.022699, PubMed 15647426

Kirwan JR, Ahlmén M, de Wit M, Heiberg T, Hehir M, Hewlett S, Katz PP, Minnock P, Quest EM, Richards P (2005)
Progress since OMERACT 6 on including patient perspective in rheumatoid arthritis outcome assessment
J Rheumatol, 32 (11), 2246-9
PubMed 16265711

Kirwan JR, Hewlett SE, Heiberg T, Hughes RA, Carr M, Hehir M, Kvien TK, Minnock P, Newman SP, Quest EM, Taal E, Wale J (2005)
Incorporating the patient perspective into outcome assessment in rheumatoid arthritis--progress at OMERACT 7
J Rheumatol, 32 (11), 2250-6
PubMed 16265712

Kvien TK, Mowinckel P, Heiberg T, Dammann KL, Dale Ø, Aanerud GJ, Alme TN, Uhlig T (2005)
Performance of health status measures with a pen based personal digital assistant
Ann Rheum Dis, 64 (10), 1480-4
DOI 10.1136/ard.2004.030437, PubMed 15843456

Shea B, Santesso N, Qualman A, Heiberg T, Leong A, Judd M, Robinson V, Wells G, Tugwell P, Cochrane Musculoskeletal Consumer Group (2005)
Consumer-driven health care: building partnerships in research
Health Expect, 8 (4), 352-9
DOI 10.1111/j.1369-7625.2005.00347.x, PubMed 16266423

Publications 2003

Kirwan J, Heiberg T, Hewlett S, Hughes R, Kvien T, Ahlmèn M, Boers M, Minnock P, Saag K, Shea B, Suarez Almazor M, Taal E (2003)
Outcomes from the Patient Perspective Workshop at OMERACT 6
J Rheumatol, 30 (4), 868-72
PubMed 12672218

Kvien TK, Heiberg T (2003)
Patient perspective in outcome assessments--perceptions or something more?
J Rheumatol, 30 (4), 873-6
PubMed 12672219

Wells G, Anderson J, Boers M, Felson D, Heiberg T, Hewlett S, Johnson K, Kirwan J, Lassere M, Robinson V, Shea B, Simon L, Strand V, van Riel P, Tugwell P (2003)
MCID/Low Disease Activity State Workshop: summary, recommendations, and research agenda
J Rheumatol, 30 (5), 1115-8
PubMed 12734920

Publications 2002

Heiberg T, Kvien TK (2002)
Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority
Arthritis Rheum, 47 (4), 391-7
DOI 10.1002/art.10515, PubMed 12209485

Heiberg T, Matskin M, Pedersen J (2002)
An agent-based architecture for customer services management and product search
Informatica, 13 (4), 441-454

Publications 1999

Heiberg T (1999)
Fremtredende aspekter ved sykepleie til kreftsyke barn i møte med døden: en narrativ tilnærming
Universitetet i Oslo, Oslo, III, 111 s.
BIBSYS 001035347

Publications 1993

Heiberg T (1993)
[Why should nurses lead their own profession?]
J Sykepleien, 81 (3), 14-5
PubMed 8499157