Publications 2021

Becker MO, Dobrota R, Garaiman A, Debelak R, Fligelstone K, Kennedy AT, Roennow A, Allanore Y, Carreira PE, Czirjak L, Denton CP, Hesselstrand R, Sandqvist G, Kowal-Bielecka O, Bruni C, Matucci-Cerinic M, Mihai C, Gheorghiu AM, Mueller-Ladner U, Sexton J, Kvien TK, Heiberg T, Distler O (2021)
Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire
Ann. Rheum. Dis.
DOI 10.1136/annrheumdis-2021-220702

Publications 2020

Duarte C, Santos E, da Silva JAP, Kristianslund EK, Kvien TK, Dougados M, de Wit M, Gossec L, Heiberg T (2020)
The Patient Experienced Symptom State (PESS): a patient-reported global outcome measure that may better reflect disease remission status
RHEUMATOLOGY, 59 (11), 3458-3467
DOI 10.1093/rheumatology/keaa149

Publications 2019

Baekelandt BMG, Fagerland MW, Hjermstad MJ, Heiberg T, Labori KJ, Buanes TA (2019)
Survival, Complications and Patient Reported Outcomes after Pancreatic Surgery
HPB, 21 (3), 275-282
DOI 10.1016/j.hpb.2018.07.023

Heiberg T, Baekelandt B, Kvien TK, Buanes T (2019)
Psychometric performance of the PAncreatic CAncer disease impact (PACADI) score
Pancreatology, 19 (7), 971-978
DOI 10.1016/j.pan.2019.09.001

Jelin E, Wisloff T, Jorstad OK, Heiberg T, Moe MC (2019)
Patient-reported outcome measures in the management of neovascular age-related macular degeneration: a 1-year prospective study
BMJ Open Ophthalmol., 4 (1), e000353
DOI 10.1136/bmjophth-2019-000353

Jelin E, Wisloff T, Moe MC, Heiberg T (2019)
Psychometric properties of the National Eye Institute Visual Function Questionnaire (NEI-VFQ 25) in a Norwegian population of patients with neovascular age-related macular degeneration compared to a control population
Health Qual. Life Outcomes, 17 (1), 140
DOI 10.1186/s12955-019-1203-0

Wevling A, Alesve C, Nygaard AM, Gunheim-Hatland L, Hoyum GM, Heiberg T (2019)
Understanding Non-Technical Skills (NTS) in Emergency-, Intensive care and Perioperative Nursing (EIP)
Nordisk Sygeplejeforskning, 9 (3), 201-212
DOI 10.18261/issn.1892-2686-2019-03-05

Publications 2018

Jelin E, Wisloff T, Moe MC, Heiberg T (2018)
Development and testing of a patient-derived questionnaire for treatment of neovascular age-related macular degeneration: dimensions of importance in treatment of neovascular age-related macular degeneration
Acta Ophthalmol., 96 (8), 804-811
DOI 10.1111/aos.13847

Schippert AC, Jelin E, Moe MC, Heiberg T, Grov EK (2018)
The Impact of Age-Related Macular Degeneration on Quality of Life and Its Association With Demographic Data: Results From the NEI VFQ-25 Questionnaire in a Norwegian Population
Gerontol. Geriatr. Med., 4
DOI 10.1177/2333721418801601

Publications 2017

Desthieux C, Granger B, Balanescu AR, Balint P, Braun J, Canete JD, Heiberg T, Helliwell PS, Kalyoncu U, Kvien TK, Kiltz U, Niedermayer D, Otsa K, Scrivo R, Smolen J, Stamm TA, Veale DJ, de Vlam K, de Wit M, Gossec L (2017)
Determinants of Patient-Physician Discordance in Global Assessment in Psoriatic Arthritis: A Multicenter European Study
Arthritis Care Res., 69 (10), 1606-1611
DOI 10.1002/acr.23172

Puyraimond-Zemmour D, Etcheto A, Fautrel B, Balanescu A, de Wit M, Heiberg T, Otsa K, Kvien TK, Dougados M, Gossec L (2017)
Associations Between Five Important Domains of Health and the Patient Acceptable Symptom State in Rheumatoid Arthritis and Psoriatic Arthritis: A Cross-Sectional Study of 977 Patients
Arthritis Care Res., 69 (10), 1504-1509
DOI 10.1002/acr.23176

Publications 2016

Baekelandt BMG, Hjermstad MJ, Nordby T, Fagerland MW, Kure EH, Heiberg T, Buanes T, Labori KJ (2016)
Preoperative cognitive function predicts survival in patients with resectable pancreatic ductal adenocarcinorna
HPB, 18 (3), 247-254
DOI 10.1016/j.hpb.2015.09.004

Gudu T, Etcheto A, de Wit M, Heiberg T, Maccarone M, Balanescu A, Balint PV, Niedermayer DS, Canete JD, Helliwell P, Kalyoncu U, Kiltz U, Otsal K, Veale DJ, de Vlam K, Scrivo R, Stamm T, Kvien TK, Gossec L (2016)
Fatigue in psoriatic arthritis - a cross-sectional study of 246 patients from 13 countries
Joint Bone Spine, 83 (4), 439-443
DOI 10.1016/j.jbspin.2015.07.017

Talli S, Etcheto A, Fautrel B, Balanescu A, Braun J, Canete JD, de Vlam K, de Wit M, Heiberg T, Helliwell P, Kalyoncu U, Kiltz U, Maccarone M, Niedermayer D, Otsa K, Scrivo R, Smolen JS, Stamm T, Veale DJ, Kvien TK, Gossec L (2016)
Patient global assessment in psoriatic arthritis - what does it mean? An analysis of 223 patients from the Psoriatic arthritis impact of disease (PsAID) study
Joint Bone Spine, 83 (3), 335-340
DOI 10.1016/j.jbspin.2015.06.018

Publications 2014

Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, Maccarone M, Carton L, Otsa K, Sooaar I, Heiberg T, Bertheussen H, Canete JD, Lombarte AS, Balanescu A, Dinte A, de Vlam K, Smolen JS, Stamm T, Niedermayer D, Bekes G, Veale D, Helliwell P, Parkinson A, Luger T et al. (2014)
A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative
Ann. Rheum. Dis., 73 (6), 1012-1019
DOI 10.1136/annrheumdis-2014-205207

Tugwell P, Boers M, D'Agostino MA, Beaton D, Boonen A, Bingham CO, Choy E, Conaghan PG, Dougados M, Duarte C, Furst DE, Guillemin F, Gossec L, Heiberg T, van der Heijde DM, Hewlett S, Kirwan JR, Kvien TK, Landewe RB, Mease PJ, Ostergaard M, Simon L, Singh JA, Strand V, Wells G (2014)
Updating the OMERACT Filter: Implications of Filter 2.0 to Select Outcome Instruments Through Assessment of "Truth": Content, Face, and Construct Validity
J. Rheumatol., 41 (5), 1000-1004
DOI 10.3899/jrheum.131310

Publications 2013

Heiberg T, Nordby T, Kvien TK, Buanes T (2013)
Development and preliminary validation of the pancreatic cancer disease impact score
Support. Care Cancer, 21 (6), 1677-1684
DOI 10.1007/s00520-012-1713-3

Nordby T, Ikdahl T, Lothe IMB, Fagerland MW, Heiberg T, Hauge T, Labori KJ, Buanes T (2013)
Improved survival and quality of life in patients undergoing R1 pancreatic resection compared to patients with locally advanced unresectable pancreatic adenocarcinoma
Pancreatology, 13 (2), 180-185
DOI 10.1016/j.pan.2013.01.003

Publications 2012

van Eijk-Hustings Y, van Tubergen A, Bostrom C, Braychenko E, Buss B, Felix J, Firth J, Hammond A, Harston B, Hernandez C, Huzjak M, Korandova J, Kukkurainen ML, Landewe R, Mezieres M, Milincovic M, Moretti A, Oliver S, Primdahl J, Scholte-Voshaar M, de la Torre-Aboki J, Waite-Jones J, Westhovens R, Zangi HA, Heiberg T et al. (2012)
EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis
Ann. Rheum. Dis., 71 (1), 13-19
DOI 10.1136/annrheumdis-2011-200185

Publications 2011

Gossec L, Paternotte S, Aanerud GJ, Balanescu A, Boumpas DT, Carmona L, de Wit M, Dijkmans BAC, Dougados M, Englbrecht M, Gogus F, Heiberg T, Hernandez C, Kirwan JR, Mola EM, Cerinic MM, Otsa K, Schett G, Scholte-Voshaar M, Sokka T, von Krause G, Wells GA, Kvien TK (2011)
Finalisation and validation of the rheumatoid arthritis impact of disease score, a patient-derived composite measure of impact of rheumatoid arthritis: a EULAR initiative
Ann. Rheum. Dis., 70 (6), 935-942
DOI 10.1136/ard.2010.142901

Heiberg T, Austad C, Kvien TK, Uhlig T (2011)
Performance of the Rheumatoid Arthritis Impact of Disease (RAID) score in relation to other patient-reported outcomes in a register of patients with rheumatoid arthritis
Ann. Rheum. Dis., 70 (6), 1080-1082
DOI 10.1136/ard.2010.143032

Heiberg T, Lie E, van der Heijde D, Kvien TK (2011)
Sleep problems are of higher priority for improvement for patients with ankylosing spondylitis than for patients with other inflammatory arthropathies
Ann. Rheum. Dis., 70 (5), 872-U317
DOI 10.1136/ard.2010.133793

Kirwan JR, Fries JF, Hewlett SE, Osborne RH, Newman S, Ciciriello S, van de Laar MA, Dures E, Minnock P, Heiberg T, Sanderson TC, Flurey CA, Leong AL, Montie P, Richards P (2011)
Patient Perspective Workshop: Moving Towards OMERACT Guidelines for Choosing or Developing Instruments to Measure Patient-Reported Outcomes
J. Rheumatol., 38 (8), 1711-1715
DOI 10.3899/jrheum.110391

Publications 2009

Gossec L, Dougados M, Rincheval N, Balanescu A, Boumpas DT, Canadelo S, Carmona L, Daures JP, de Wit M, Dijkmans BAC, Englbrecht M, Gunendi Z, Heiberg T, Kirwan JR, Mola EM, Matucci-Cerinic M, Otsa K, Schett G, Sokka T, Wells GA, Aanerud GJ, Celano A, Dudkin A, Hernandez C, Koutsogianni K et al. (2009)
Elaboration of the preliminary Rheumatoid Arthritis Impact of Disease (RAID) score: a EULAR initiative
Ann. Rheum. Dis., 68 (11), 1680-1685
DOI 10.1136/ard.2008.100271

Smedslund G, Mowinckel P, Heiberg T, Kvien TK, Hagen KB (2009)
Does the Weather Really Matter? A Cohort Study of Influences of Weather and Solar Conditions on Daily Variations of Joint Pain in Patients With Rheumatoid Arthritis
Arthritis Rheum-Arthritis Care Res., 61 (9), 1243-1247
DOI 10.1002/art.24729

Publications 2008

Heiberg T (2008)
Outcome assessment in rheumatoid arthritis: the patient perspective
In Series of dissertations submitted to the Faculty of Medicine, University of Oslo, Unipub, Oslo, no. 676, 1 b. (flere pag.)
BIBSYS 082534594, ISBN 978-82-8072-907-1

Heiberg T, Kvien TK, Mowinckel P, Aletaha D, Smolen JS, Hagen KB (2008)
Identification of disease activity and health status cut-off points for the symptom state acceptable to patients with rheumatoid arthritis
Ann. Rheum. Dis., 67 (7), 967-971
DOI 10.1136/ard.2007.077503

Mowinckel P, Hagen KB, Heiberg T, Kvien TK (2008)
Repeated measures in rheumatoid arthritis reduced the required sample size in a two-armed clinical trial
J. Clin. Epidemiol., 61 (9), 940-944
DOI 10.1016/j.jclinepi.2007.12.004

Uhlig T, Heiberg T, Mowinckel P, Kvien TK (2008)
Rheumatoid arthritis is milder in the new millennium: health status in patients with rheumatoid arthritis 1994-2004
Ann. Rheum. Dis., 67 (12), 1710-1715
DOI 10.1136/ard.2007.084673

Publications 2007

Heiberg T, Kvien TK, Dale O, Mowinckel P, Aanerud GJ, Songe-Moller AB, Uhlig T, Hagen KB (2007)
Daily health status registration (patient diary) in patients with rheumatoid arthritis: A comparison between personal digital assistant and paper-pencil format
Arthritis Rheum-Arthritis Care Res., 57 (3), 454-460
DOI 10.1002/art.22613

Kvien TK, Heiberg T, Hagen KB (2007)
Minimal clinically important improvement/difference (MCII/MCID) and patient acceptable symptom state (PASS): what do these concepts mean?
Ann. Rheum. Dis., 66 3, 40-41
DOI 10.1136/ard.2007.079798

Publications 2006

Hewlett S, De Wit M, Richards P, Quest E, Hughes R, Heiberg T, Kirwan J (2006)
Patients and professionals as research partners: Challenges, practicalities, and benefits
Arthritis Rheum-Arthritis Care Res., 55 (4), 676-680
DOI 10.1002/art.22091

Publications 2005

Heiberg T, Finset A, Kvien TK (2005)
Seven year changes in health status and priorities for improvement of health in patients with rheumatoid arthritis
Ann. Rheum. Dis., 64 (2), 191-195
DOI 10.1136/ard.2004.022699

Kvien TK, Mowinckel P, Heiberg T, Dammann KL, Dale O, Aanerud GJ, Alme TN, Uhlig T (2005)
Performance of health status measures with a pen based personal digital assistant
Ann. Rheum. Dis., 64 (10), 1480-1484
DOI 10.1136/ard.2004.030437

Shea B, Santesso N, Qualman A, Heiberg T, Leong A, Judd M, Robinson V, Wells G, Tugwell P, Cochrane Musculoskeletal Consumer (2005)
Consumer-driven health care: Building partnerships in research
Health Expect., 8 (4), 352-359
DOI 10.1111/j.1369-7625.2005.00347.x

Publications 2003

Kirwan J, Heiberg T, Hewlett S, Hughes R, Kvien T, Ahlmen M, Boers M, Minnock P, Saag K, Shea B, Almazor MS, Taal E (2003)
Outcomes from the Patient Perspective Workshop at OMERACT 6
J. Rheumatol., 30 (4), 868-872

Kvien TK, Heiberg T (2003)
Patient perspective in outcome assessments - Perceptions or something more?
J. Rheumatol., 30 (4), 873-876

Publications 2002

Heiberg T, Kvien TK (2002)
Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: Pain has highest priority
Arthritis Rheum-Arthritis Care Res., 47 (4), 391-397
DOI 10.1002/art.10515

Heiberg T, Matskin M, Pedersen J (2002)
An agent-based architecture for customer services management and product search
Informatica, 13 (4), 441-454

Publications 1999

Heiberg T (1999)
Fremtredende aspekter ved sykepleie til kreftsyke barn i møte med døden: en narrativ tilnærming
Universitetet i Oslo, Oslo, III, 111 s.
BIBSYS 001035347