Marit Helen Andersen
- Professor II; PhD
- +47 23 07 00 00
Patient-reported outcomes following living donor nephrectomy
Kidney transplantation is the optimal treatment for patients with end stage renal disease. In Norway almost 40 % of all renal transplants are performed with organs from living donors, and efforts are made to increase the number of kidneys available for transplantation. The purpose of this thesis was to study clinical and patient-reported outcomes following living kidney donor nephrectomy, with particular emphasis on patient-reported outcomes. A combination of quantitative and qualitative research approaches was used. In a randomized, controlled trial of 122 donors we compared laparoscopic and open donor nephrectomy, focusing on donor safety, postoperative pain, sick leave, health status and overall quality of life at 1, 6 and 12 months follow-up. To explore donor experiences of going through surgery 12 donors were in-depth interviewed at one week and at one year after open donor nephrectomy.
The results from the randomized trial demonstrated that the conventional open donor nephrectomy was superior to laparoscopic donor nephrectomy with regard to donor safety. Yet, an uncomplicated laparoscopic donor nephrectomy had important short-term advantages such as less analgesic requirements, less postoperative pain, shorter sick leave, and better health status and as compared to the open approach. Long-term follow up revealed significant differences in favour of laparoscopy only when adjusting for reoperations and convertions. We therefore conclude that long term benefits are hard to prove in favour of the laparoscopic technique. The in-depth interviews revealed that a positive feeling about being a donor was the dominant theme in both interview series. Though experiencing disincentives from surgery during the first postoperative period, the donors expressed that they were back to their normal health at one year after surgery. Donors experiencing unsuccessful recipient outcome did not regret donation.
Publications not indexed by PubMed:
Larsen MH, Hermansen Å, Borge CR, Strumse YS, Andersen MH & Wahl AK.
Health literacy profiling in persons with psoriasis – a cluster analysis.
Skin Health and Disease 2021
Larsen, MH, Strumse YSS, Borge CR, Andersen, MH, Wahl AK.
Viktige sammenhenger mellom aleksitymi og helsekompetanse hos pasienter med psoriasis som har deltatt i klimabehandling.
Best Practice Nordic 2020 (JUNI) p. -LDH LDS OUS UiO.
Haraldstad, Kristin; Wahl, Astrid Klopstad; Andenæs, Randi; Andersen, John Roger; Andersen, Marit Helen; Elisabeth Grov, Beisland; Råheim Borge, Christine; Engebretsen, Eivind; Eisemann, Martin; Halvorsrud, Liv Torill; Hanssen, Tove Aminda; Haugstvedt, Anne; Haugland, Trude; Johansen, Venke A; Løvereide, Lise; Larsen, Marie Hamilton; Løyland, Borghild; Kvarme, Lisbeth Gravdal; Moons, Philip; Norekvål, Tone M.; Ribu, Lis; Urstad, Kristin Hjorthaug; Rohde, Gudrun Elin; Helseth, Sølvi.
A systematic snapshot review of quality of life research in medicine and health sciences.
Internasjonal livskvalitetskonferanse, ISOQOL; 2018-10-24 - 2018-10-28.
Engebretsen, Eivind; Andersen, Marit Helen; Urstad, Kristin Hjorthaug; Wahl, Astrid Klopstad.
Action Research in Implementation and Evaluation. Outline of a Study of a Training Programme for Kidney Transplant Recipients. I: Theory and Methodology in International Comparative Classroom Studies.
Cappelen Damm Akademisk 2014 ISBN 978–82-02–47061–6. s. 256-266.
Foss, Aksel; Andersen, Marit Helen; Hagness, Morten; Vidnes, Tone Karine; Finstad, Ellen Drolsum; Wahl, Astrid Klopstad; Dueland, Svein.
Patient Survival and Quality of Life Following Liver Transplantation for Colorectal Liver Metastases.
Liver transplantation 2010 ;Volum 16.(6) s. S189-S190.
Indexed by PubMed:
How to co-design a health literacy-informed intervention based on a needs assessment study in chronic obstructive pulmonary disease
BMJ Open, 12 (10), e063022
"A bit of everything": Health literacy interventions in chronic conditions - a systematic review
Patient Educ Couns, 105 (10), 2999-3016
Health-Related Quality of Life in Colorectal Cancer Patients Treated With Liver Transplantation Compared to Chemotherapy
Transpl Int, 35, 10404
Definitions and measurement of health literacy in health and medicine research: a systematic review
BMJ Open, 12 (2), e056294
The importance of shared meaning-making for sustainable knowledge translation and health literacy
J Eval Clin Pract, 28 (5), 828-834
Intervening on health literacy by knowledge translation processes in kidney transplantation: A feasibility study
J Ren Care, 48 (1), 60-68
Comparing the use of patient-reported outcomes in clinical studies in Europe in 2008 and 2018: a literature review
Qual Life Res, 31 (3), 659-669
Exploring patients' and health professionals' perspectives on health literacy needs in the context of chronic obstructive pulmonary disease
Chronic Illn, 18 (3), 549-561
Changes in Health Literacy during the first year following a kidney transplantation: Using the Health Literacy Questionnaire
Patient Educ Couns, 104 (7), 1814-1822
High satisfaction on genital self-perception and sexual function in healthy Norwegian male adolescents
J Pediatr Urol, 17 (4), 555.e1-555.e8
Renal recipients' knowledge and self-efficacy during first year after implementing an evidence based educational intervention as routine care at the transplantation clinic
BMC Nephrol, 22 (1), 265
Exploring health literacy needs in Chronic obstructive pulmonary disease (COPD): Associations between demographic, clinical variables, psychological well-being and health literacy
Heart Lung, 50 (3), 417-424
Processes of knowing in the translation of a health communication intervention for dialysis patients awaiting kidney transplantation
Patient Educ Couns, 104 (3), 517-523
Identifying Core Variables Associated With Health Literacy in Kidney Transplant Recipients
Prog Transplant, 30 (1), 38-47
Reaching adulthood with Hirschsprung's disease: Patient experiences and recommendations for transitional care
J Pediatr Surg, 56 (2), 257-262
Working with patients suffering from chronic diseases can be a balancing act for health care professionals - a meta-synthesis of qualitative studies
BMC Health Serv Res, 20 (1), 98
Relevant associations between alexithymia and health-literacy in persons with psoriasis
J Dermatolog Treat, 33 (1), 380-388
Implementing a tailored education programme: renal transplant recipients' experiences
J Ren Care, 45 (2), 111-119
Does the Villalta scale capture the essence of postthrombotic syndrome? A qualitative study of patient experience and expert opinion
J Thromb Haemost, 17 (10), 1707-1714
Quality of life from a randomized trial of laparoscopic or open liver resection for colorectal liver metastases
Br J Surg, 106 (10), 1372-1380
The trigger-information-response model: Exploring health literacy during the first six months following a kidney transplantation
PLoS One, 14 (10), e0223533
Evaluation of tools for annual capture of adherence to immunosuppressive medications after renal transplantation - a single-centre open prospective trial
Transpl Int, 32 (6), 614-625
A systematic review of quality of life research in medicine and health sciences
Qual Life Res, 28 (10), 2641-2650
Intravenous Patient-controlled Analgesia Versus Thoracic Epidural Analgesia After Open Liver Surgery: A Prospective, Randomized, Controlled, Noninferiority Trial
Ann Surg, 270 (2), 193-199
Directly observed therapy prior to ambulatory blood pressure measurement (DOT-HTN) in uncontrolled hypertensive patients - Effect on blood pressure, safety and patient perception
Blood Press, 28 (5), 327-335
Health literacy: a new piece of the puzzle in psoriasis care? A cross-sectional study
Br J Dermatol, 180 (6), 1506-1516
Associations between disease education, self-management support, and health literacy in psoriasis
J Dermatolog Treat, 32 (6), 603-609
Psychosocial and clinical outcomes of percutaneous versus surgical pulmonary valve implantation
Open Heart, 5 (1), e000758
Going through laparoscopic liver resection in patients with colorectal liver metastases-A qualitative study
Nurs Open, 6 (2), 260-267
Long-term quality of life after liver transplantation for non-resectable colorectal metastases confined to the liver
BJS Open, 3 (2), 180-185
Laparoscopic Versus Open Resection for Colorectal Liver Metastases: The OSLO-COMET Randomized Controlled Trial
Ann Surg, 267 (2), 199-207
How does a new patient education programme for renal recipients become situated and adapted when implemented in the daily teaching practice in a university hospital? An ethnographic observation study
BMJ Open, 8 (11), e023005
Improved Health-Related Quality of Life in Older Kidney Recipients 1 Year After Transplantation
Transplant Direct, 4 (4), e351
Changes in health-related quality of life in older candidates waiting for kidney transplantation
Nephrology (Carlton), 23 (10), 948-956
Older kidney transplantation candidates' expectations of improvement in life and health following kidney transplantation: semistructured interviews with enlisted dialysis patients aged 65 years and older
BMJ Open, 8 (6), e021275
Implementation of a new patient education programme for renal transplant recipients
J Ren Care, 44 (2), 106-114
Lack of cross-cultural validity of the Endometriosis Health Profile-30
J Endometr Pelvic Pain Disord, 10 (2), 107-115
Health-related quality of life in women with endometriosis, compared with the general population and women with rheumatoid arthritis
Acta Obstet Gynecol Scand, 97 (11), 1339-1348
In-hospital cost comparison between percutaneous pulmonary valve implantation and surgery
Eur J Cardiothorac Surg, 51 (4), 747-753
Exploring nurse managers' perception of using the RAFAELA system as a management tool in a Norwegian hospital setting
Nurs Open, 5 (1), 77-83
Long-term experiences of Norwegian live kidney donors: qualitative in-depth interviews
BMJ Open, 7 (2), e014072
Relationships Between Clinical, Self-Reported, and Donation Specific Outcomes: A Prospective Follow-up Study 10 Years After Kidney Donation
Ann Transplant, 22, 148-155
Donation after circulatory death - an expanded opportunity for donation appreciated by families
J Crit Care, 43, 306-311
Nursing intensity and costs of nurse staffing demonstrated by the RAFAELA system: liver vs. kidney transplant recipients
J Nurs Manag, 24 (6), 798-805
Long-term, self-reported health outcomes in kidney donors
BMC Nephrol, 17, 8
Open versus laparoscopic liver resection for colorectal liver metastases (the Oslo-CoMet Study): study protocol for a randomized controlled trial
Trials, 16, 73
A qualitative study of manager experiences using the RAFAELA system
Open Journal of Nursing, 5, 1224-1232
Testing reliability and validity of the Oulu Patient Classification instrument- the first step in evaluating the RAFAELA system in Norway
OJN, 4, 303-311
Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
BMJ Open, 4 (7), e005102
The RAFAELA system: a workforce planning tool for nurse staffing and human resource management
Nurs Manag (Harrow), 21 (2), 30-6
Quality of life following liver transplantation in patients with liver metastases from colorectal carcinoma
Scand J Caring Sci, 26 (4), 713-9
Renal recipients' educational experiences in the early post-operative phase--a qualitative study
Scand J Caring Sci, 26 (4), 635-42
Limited evidence for the effectiveness of educational interventions for renal transplant recipients. Results from a systematic review of controlled clinical trials
Patient Educ Couns, 90 (2), 147-54
The effect of an educational intervention for renal recipients: a randomized controlled trial
Clin Transplant, 26 (3), E246-53
Patient experiences following liver transplantation due to liver metastases from colorectal cancer
Eur J Oncol Nurs, 17 (3), 269-74
Qualitative study of pain of patients with chronic obstructive pulmonary disease
Heart Lung, 39 (3), 226-34
Patients' level of knowledge measured five days after kidney transplantation
Clin Transplant, 25 (4), 646-52
Cost effectiveness of open versus laparoscopic living-donor nephrectomy
Transplantation, 87 (6), 831-8
Changes in cardiac and cognitive function and self-reported outcomes at one year after coronary artery bypass grafting
J Thorac Cardiovasc Surg, 140 (1), 122-8
Kreativitet, tålmodighet og ikke minst tid ...: læreres erfaring med å tilrettelegge leseopplæring for barn med autisme
M.H. Andersen, Oslo, 80 s.
Patient-reported outcomes following living donor nephrectomy
In Series of dissertations submitted to the Faculty of Medicine, University of Oslo, Unipub, Oslo, no. 698, 1 b. (flere pag.)
Filigran: teknikk og metode
Fagbokforl., Bergen, 151 s.
Chronikalische Strukturen zwischen Archiv und Kritik: Gottfried Arnolds Unpartiische Kirchen- und Ketzerhistorie
M. Andersen, [Tromsø], 70 s.
Follow-up interviews of 12 living kidney donors one yr after open donor nephrectomy
Clin Transplant, 21 (6), 702-9
Quality of life after randomization to laparoscopic versus open living donor nephrectomy: long-term follow-up
Transplantation, 84 (1), 64-9
Quality of life can both influence and be an outcome of general health perceptions after heart surgery
Health Qual Life Outcomes, 5, 27
Postoperative pain and convalescence in living kidney donors-laparoscopic versus open donor nephrectomy: a randomized study
Am J Transplant, 6 (6), 1438-43
Clinical and radiologic outcome of off-pump coronary surgery at 12 months follow-up: a prospective randomized trial
Ann Thorac Surg, 81 (6), 2089-95
Living donors' experiences 1 wk after donating a kidney
Clin Transplant, 19 (1), 90-6
Patient-reported outcome after randomization to on-pump versus off-pump coronary artery surgery
Ann Thorac Surg, 79 (5), 1584-9
Preoperative cerebral ischemic lesions predict physical health status after on-pump coronary artery bypass surgery
J Thorac Cardiovasc Surg, 130 (6), 1691-7
Laparoscopic versus open living-donor nephrectomy: experiences from a prospective, randomized, single-center study focusing on donor safety
Transplantation, 79 (9), 1236-40
Minigriser: foring, stell og opplæring
Eget, 40 s.
En studie av livskvalitet hos pasienter med leggsår i Bergen kommune
[Marit Helen Andersen], Bergen, 107,  bl.
Betydningen av psykoterapeutens indre arbeid for terapiprosessen
Universitetet, Oslo, III, 117 bl.
Runar vart 17 år
Det norske samlaget, Oslo, 103 s.