Publications 2024

Forslund MV, Borgen IMH, Karic T, Kleffelgård I, Hauger SL, Løvstad M, van Walsem MR, Howe EI, Brunborg C, Andelic N, Røe C (2024)
Validity of the Norwegian Version of the Needs and Provision Complexity Scale (NPCS) in Patients with Traumatic Brain Injury and Atraumatic Subarachnoid Hemorrhage
J Clin Med, 13 (3)
DOI 10.3390/jcm13030752, PubMed 38337446

van Walsem MR, Howe EI, Andelic N, Frich JC (2024)
Primary health care professionals' experiences with caring for patients with advanced Huntington's disease: a qualitative study
BMC Prim Care, 25 (1), 155
DOI 10.1186/s12875-024-02408-2, PubMed 38714964

Publications 2023

Mühlbӓck A, van Walsem M, Nance M, Arnesen A, Page K, Fisher A, van Kampen M, Nuzzi A, Limpert R, Fossmo HL, Cruickshank T, Veenhuizen R, Multidisciplinary Care and Treatment Working Group of the European Huntington’s Disease Network (2023)
What we don't need to prove but need to do in multidisciplinary treatment and care in Huntington's disease: a position paper
Orphanet J Rare Dis, 18 (1), 19
DOI 10.1186/s13023-023-02622-8, PubMed 36717864

Publications 2022

Andries A, Van Walsem MR, Ørstavik K, Frich JC (2022)
Functional Ability and Physical Activity in Hereditary Neuromuscular Diseases
J Neuromuscul Dis, 9 (3), 437-446
DOI 10.3233/JND-210677, PubMed 35180128

van Walsem MR, Frich JC, Gómez Castañeda M, Howe EI, Pihlstrøm L, Andelic N, Aas E (2022)
Health related quality of life, service utilization and costs for patients with Huntington's disease in Norway
BMC Health Serv Res, 22 (1), 1527
DOI 10.1186/s12913-022-08881-8, PubMed 36517848

Publications 2021

Forslund MV, Perrin PB, Sigurdardottir S, Howe EI, van Walsem MR, Arango-Lasprilla JC, Lu J, Aza A, Jerstad T, Røe C, Andelic N (2021)
Health-Related Quality of Life Trajectories across 10 Years after Moderate to Severe Traumatic Brain Injury in Norway
J Clin Med, 10 (1)
DOI 10.3390/jcm10010157, PubMed 33466321

Grimstvedt TN, Miller JU, van Walsem MR, Feragen KJB (2021)
Speech and language difficulties in Huntington's disease: A qualitative study of patients' and professional caregivers' experiences
Int J Lang Commun Disord, 56 (2), 330-345
DOI 10.1111/1460-6984.12604, PubMed 33577706

Stadskleiv K, van Walsem MR, Andersen GL, Bergqvist L, Bøttcher L, Christensen K, Heyerdahl D, Hollung SJ, Høye H, Jahnsen R, Klevberg GL, Lindquist B, Passmark H, Rike PO, Rodby-Bousquet E, Alriksson-Schmidt AI (2021)
Systematic Monitoring of Cognition for Adults With Cerebral Palsy-The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol
Front Neurol, 12, 710440
DOI 10.3389/fneur.2021.710440, PubMed 34630285

Publications 2020

Andries A, van Walsem MR, Frich JC (2020)
Self-reported physical activity in people with limb-girdle muscular dystrophy and Charcot-Marie-Tooth disease in Norway
BMC Musculoskelet Disord, 21 (1), 235
DOI 10.1186/s12891-020-03246-w, PubMed 32284057

van Walsem MR, Howe EI, Perrin PB, Sigurdardottir S, Røe C, Sveen U, Lu J, Forslund MV, Andelic N (2020)
Trajectories of self-reported competency up to 10 years following moderate-to-severe traumatic brain injury
Brain Inj, 34 (3), 335-342
DOI 10.1080/02699052.2019.1704061, PubMed 31928233

Publications 2019

Holmøy AKT, Johannessen CH, Hope S, van Walsem MR, Aanonsen NO, Hassel B (2019)
Uncovering health and social care needs among myotonic dystrophy patients: Utility of the Needs and Provisions Complexity Scale
Acta Neurol Scand, 139 (6), 526-532
DOI 10.1111/ane.13086, PubMed 30848487

Schwartz AE, van Walsem MR, Brean A, Frich JC (2019)
Therapeutic Use of Music, Dance, and Rhythmic Auditory Cueing for Patients with Huntington's Disease: A Systematic Review
J Huntingtons Dis, 8 (4), 393-420
DOI 10.3233/JHD-190370, PubMed 31450508

Publications 2018

Røe C, Kirkevold M, Andelic N, Soberg HL, Sveen U, Bautz-Holter E, Jahnsen R, van Walsem MR, Kildal Bragstad L, Gabrielsen Hjelle E, Klevberg G, Oretorp P, Habberstad A, Hagfors J, Væhle R, Engen G, Gutenbrunner C (2018)
The challenges of describing rehabilitation services: A discussion paper
J Rehabil Med, 50 (2), 151-158
DOI 10.2340/16501977-2299, PubMed 29260837

van Walsem MR, Piira A, Mikalsen G, Fossmo HL, Howe EI, Knutsen SF, Frich JC (2018)
Cognitive Performance After a One-Year Multidisciplinary Intensive Rehabilitation Program for Huntington's Disease: An Observational Study
J Huntingtons Dis, 7 (4), 379-389
DOI 10.3233/JHD-180294, PubMed 30320595

Publications 2017

van Walsem MR, Howe EI, Ruud GA, Frich JC, Andelic N (2017)
Health-related quality of life and unmet healthcare needs in Huntington's disease
Health Qual Life Outcomes, 15 (1), 6
DOI 10.1186/s12955-016-0575-7, PubMed 28069034

Publications 2016

van Walsem MR, Howe EI, Frich JC, Andelic N (2016)
Assistive Technology for Cognition and Health-related Quality of Life in Huntington's Disease
J Huntingtons Dis, 5 (3), 261-270
DOI 10.3233/JHD-160210, PubMed 27689618

Publications 2015

van Walsem MR, Howe EI, Iversen K, Frich JC, Andelic N (2015)
Unmet needs for healthcare and social support services in patients with Huntington's disease: a cross-sectional population-based study
Orphanet J Rare Dis, 10, 124
DOI 10.1186/s13023-015-0324-8, PubMed 26411462

Publications 2014

Piira A, van Walsem MR, Mikalsen G, Øie L, Frich JC, Knutsen S (2014)
Effects of a Two-Year Intensive Multidisciplinary Rehabilitation Program for Patients with Huntington's Disease: a Prospective Intervention Study
PLoS Curr, 6
DOI 10.1371/currents.hd.2c56ceef7f9f8e239a59ecf2d94cddac, PubMed 25642382

van Duijn E, Craufurd D, Hubers AA, Giltay EJ, Bonelli R, Rickards H, Anderson KE, van Walsem MR, van der Mast RC, Orth M, Landwehrmeyer GB, European Huntington's Disease Network Behavioural Phenotype Working Group (2014)
Neuropsychiatric symptoms in a European Huntington's disease cohort (REGISTRY)
J Neurol Neurosurg Psychiatry, 85 (12), 1411-8
DOI 10.1136/jnnp-2013-307343, PubMed 24828898

Publications 2013

Piira A, van Walsem MR, Mikalsen G, Nilsen KH, Knutsen S, Frich JC (2013)
Effects of a One Year Intensive Multidisciplinary Rehabilitation Program for Patients with Huntington's Disease: a Prospective Intervention Study
PLoS Curr, 5
DOI 10.1371/currents.hd.9504af71e0d1f87830c25c394be47027, PubMed 24459605

Publications 2011

Rickards H, De Souza J, Crooks J, van Walsem MR, van Duijn E, Landwehrmeyer B, Squitieri F, Simpson SA, European Huntington’s Disease Network (2011)
Discriminant analysis of Beck Depression Inventory and Hamilton Rating Scale for Depression in Huntington's disease
J Neuropsychiatry Clin Neurosci, 23 (4), 399-402
DOI 10.1176/jnp.23.4.jnp399, PubMed 22231310

Publications 2010

Rickards H, De Souza J, van Walsem M, van Duijn E, Simpson SA, Squitieri F, Landwehrmeyer B, European Huntington's Disease Network (2010)
Factor analysis of behavioural symptoms in Huntington's disease
J Neurol Neurosurg Psychiatry, 82 (4), 411-2
DOI 10.1136/jnnp.2009.181149, PubMed 20392980

Publications 2009

van Walsem MR, Sundet K, Retterstøl L, Sundseth Ø (2009)
A double blind evaluation of cognitive decline in a Norwegian cohort of asymptomatic carriers of Huntington's disease
J Clin Exp Neuropsychol, 32 (6), 590-8
DOI 10.1080/13803390903337878, PubMed 19916101