Publications 2024

Kittelsen TB, Castor C, Lee A, Kvarme LG, Winger A (2024)
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Int J Qual Stud Health Well-being, 19 (1), 2321645
DOI 10.1080/17482631.2024.2321645, PubMed 38404038

Kittelsen TB, Castor C, Lee A, Kvarme LG, Winger A (2024)
Focusing on life rather than illness: the lived experience of children with life-threatening and life-limiting conditions-a qualitative study
Palliat Care Soc Pract, 18, 26323524241301431
DOI 10.1177/26323524241301431, PubMed 39618726

Kittelsen TB, Lorentsen VB, Castor C, Lee A, Kvarme LG, Winger A (2024)
It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition - a qualitative study
BMC Palliat Care, 23 (1), 92
DOI 10.1186/s12904-024-01417-3, PubMed 38589835

Publications 2023

Holmen H, Winger A, Steindal SA, Riiser K, Castor C, Kvarme LG, Mariussen KL, Lee A (2023)
Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs-a scoping review
BMC Palliat Care, 22 (1), 148
DOI 10.1186/s12904-023-01271-9, PubMed 37798706

Aasen ERHV, Søvik ML, Størdal K, Lee A (2023)
Are We on the Same Page? Exploring Pediatric Patients' Involvement With Advance Care Planning
J Pain Symptom Manage, 66 (3), e353-e363
DOI 10.1016/j.jpainsymman.2023.04.003, PubMed 37054956

Publications 2022

Riiser K, Holmen H, Winger A, Steindal SA, Castor C, Kvarme LG, Lee A, Lorentsen VB, Misvaer N, Früh EA (2022)
Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept
BMC Palliat Care, 21 (1), 187
DOI 10.1186/s12904-022-01077-1, PubMed 36273144

Winger A, Früh EA, Holmen H, Kvarme LG, Lee A, Lorentsen VB, Misvær N, Riiser K, Steindal SA (2022)
Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care
BMC Palliat Care, 21 (1), 50
DOI 10.1186/s12904-022-00933-4, PubMed 35410275

Publications 2021

Holmen H, Winger A, Steindal SA, Castor C, Kvarme LG, Riiser K, Mariussen KL, Lee A (2021)
Patient-reported outcome measures in pediatric palliative care-a protocol for a scoping review
Syst Rev, 10 (1), 237
DOI 10.1186/s13643-021-01791-6, PubMed 34454605

Publications 2020

Lee A (2020)
Private paediatric hospice - is it such a bad idea?
Tidsskr Nor Laegeforen, 140 (16)
DOI 10.4045/tidsskr.20.0784, PubMed 33172250

Lee A (2020)
Private children's hospice - is it that dangerous then?
Tidsskr. Nor. Laegeforen., 140 (16), 1619-1620

Publications 2019

Lee A (2019)
[Palliative follow-up of children with univentricular hearts]
Tidsskr Nor Laegeforen, 139 (8)
DOI 10.4045/tidsskr.19.0275, PubMed 31062564

Lee A (2019)
Palliative follow-up of children with univentricular hearts
Tidsskr. Nor. Laegeforen., 139 (8), 686-687

Lee A, Holmstrom H (2019)
When children should not be old
Tidsskr. Nor. Laegeforen., 139 (7), 581

Lee A, Holmstrøm H (2019)
When children will not grow old
Tidsskr Nor Laegeforen, 139 (7)
DOI 10.4045/tidsskr.19.0210, PubMed 30969039