Collaborative projects: 

ALL-Star – Aim of the study: To increase the knowledge base on how it goes in the short and long term after treatment of acute lymphoblastic leukemia (ALL) in children. In the ALL-STAR study, we will follow and study health-related variables, psychosocial factors and quality of life in study participants from the Nordic countries (Norway, Sweden, Denmark, Finland, Iceland) and Lithuania, who have all received the same leukemia treatment according to the NOPHO ALL2008 protocol.

Retinoblastom – Aim of the study: Survey the health and quality of life of retinoblastom (RB) survivors in Norway, and explore possible connections with visual and hearing function, disease prevalence, heredity and treatment method. This has not previously been investigated in Norway, and will be able to reveal the challenges and needs of this specific group of childhood cancer survivors. It is very relevant in terms of being able to improve the treatment and follow-up of future RB patients.

MUNE MScanfit study– Aim for the study: Investigate the validity of the new MUNE (motor unit number estimation) method Mscan, as well as investigate the utility of Mscan to monitor progression of ALS. Our research group is pioneered in showing that MScan is a sensitive and reliable method, but the method needs to be tested in multicentre studies using large cohorts, before it can be considered suitable for widespread clinical use.. An international collaborative study as a part of the ESTEEM network, organized by Aarhus University Hospital

NI-study  – Aim of the study: Neurophysiology Index (NI) as an electrophysiological biomarker in ALS patients. To examine whether NI is a sensitive and specific parameter for ALS diagnosis, as well if NI is a sensitive parameter for early detection of motor unit loss in ALS. KNF will perform neurography examinations on the same patients participating in the MUNE project. An international collaborative study as a part of the ESTEEM network, organized by Aarhus University Hospital.

NOR-CACTUS – Aim of the study: The main hypothesis of the project is that management of patients with mild to moderate idiopathic CTS by a treatment strategy with initial use of ultrasound-guided corticosteroid injection, scheduled clinical assessment of treatment effect and surgery in case of suboptimal treatment result, provide non-inferior long-term outcomes compared to surgery as first-line treatment, while reducing the incidence of adverse events and the overall need for surgical interventions. Participants are recruiting from Diakonhjemmet and Martine Hansen. KNF is performing nerve conduction studies.
Links:
NOR-CACTUS home page (in Norwegian) (remedy-senter.no)
En norsk studie som sammenligner behandlingsstrategier ved karpaltunnelsyndrom (diakonhjemmetsykehus.no)