NorChildCTD
We are conducting a Norwegian register-based study on childhood-onset systemic connective tissue diseases (cCTD). Using existing infrastructure, including rheumatic registries and biobanks, our goals are to establish a national prospective cohort and a historical cohort at OUS for cCTD patients. The study aims to provide essential insights into cCTD epidemiology in Norway, variations in organ damage and quality of life over time, treatment and outcome disparities nationally, and knowledge expansion across disease groups. This research will contribute to optimized treatment and streamlined follow-up both at OUS and nationally, laying the foundation for a personalized approach. Additionally, we will collect valuable clinical data and biospecimens for further research. We are currently in the process of applying for funding.