Marit Helen Andersen
- Professor II; PhD
- +47 23 07 00 00
Patient-reported outcomes following living donor nephrectomy
Kidney transplantation is the optimal treatment for patients with end stage renal disease. In Norway almost 40 % of all renal transplants are performed with organs from living donors, and efforts are made to increase the number of kidneys available for transplantation. The purpose of this thesis was to study clinical and patient-reported outcomes following living kidney donor nephrectomy, with particular emphasis on patient-reported outcomes. A combination of quantitative and qualitative research approaches was used. In a randomized, controlled trial of 122 donors we compared laparoscopic and open donor nephrectomy, focusing on donor safety, postoperative pain, sick leave, health status and overall quality of life at 1, 6 and 12 months follow-up. To explore donor experiences of going through surgery 12 donors were in-depth interviewed at one week and at one year after open donor nephrectomy.
The results from the randomized trial demonstrated that the conventional open donor nephrectomy was superior to laparoscopic donor nephrectomy with regard to donor safety. Yet, an uncomplicated laparoscopic donor nephrectomy had important short-term advantages such as less analgesic requirements, less postoperative pain, shorter sick leave, and better health status and as compared to the open approach. Long-term follow up revealed significant differences in favour of laparoscopy only when adjusting for reoperations and convertions. We therefore conclude that long term benefits are hard to prove in favour of the laparoscopic technique. The in-depth interviews revealed that a positive feeling about being a donor was the dominant theme in both interview series. Though experiencing disincentives from surgery during the first postoperative period, the donors expressed that they were back to their normal health at one year after surgery. Donors experiencing unsuccessful recipient outcome did not regret donation.
Publications not indexed by PubMed:
Larsen MH, Hermansen Å, Borge CR, Strumse YS, Andersen MH & Wahl AK.
Health literacy profiling in persons with psoriasis – a cluster analysis.
Skin Health and Disease 2021
Larsen, MH, Strumse YSS, Borge CR, Andersen, MH, Wahl AK.
Viktige sammenhenger mellom aleksitymi og helsekompetanse hos pasienter med psoriasis som har deltatt i klimabehandling.
Best Practice Nordic 2020 (JUNI) p. -LDH LDS OUS UiO.
Haraldstad, Kristin; Wahl, Astrid Klopstad; Andenæs, Randi; Andersen, John Roger; Andersen, Marit Helen; Elisabeth Grov, Beisland; Råheim Borge, Christine; Engebretsen, Eivind; Eisemann, Martin; Halvorsrud, Liv Torill; Hanssen, Tove Aminda; Haugstvedt, Anne; Haugland, Trude; Johansen, Venke A; Løvereide, Lise; Larsen, Marie Hamilton; Løyland, Borghild; Kvarme, Lisbeth Gravdal; Moons, Philip; Norekvål, Tone M.; Ribu, Lis; Urstad, Kristin Hjorthaug; Rohde, Gudrun Elin; Helseth, Sølvi.
A systematic snapshot review of quality of life research in medicine and health sciences.
Internasjonal livskvalitetskonferanse, ISOQOL; 2018-10-24 - 2018-10-28.
Engebretsen, Eivind; Andersen, Marit Helen; Urstad, Kristin Hjorthaug; Wahl, Astrid Klopstad.
Action Research in Implementation and Evaluation. Outline of a Study of a Training Programme for Kidney Transplant Recipients. I: Theory and Methodology in International Comparative Classroom Studies.
Cappelen Damm Akademisk 2014 ISBN 978–82-02–47061–6. s. 256-266.
Foss, Aksel; Andersen, Marit Helen; Hagness, Morten; Vidnes, Tone Karine; Finstad, Ellen Drolsum; Wahl, Astrid Klopstad; Dueland, Svein.
Patient Survival and Quality of Life Following Liver Transplantation for Colorectal Liver Metastases.
Liver transplantation 2010 ;Volum 16.(6) s. S189-S190.
Indexed by PubMed:
Publications 2024
Profiles of health literacy and digital health literacy in clusters of hospitalised patients: a single-centre, cross-sectional study
BMJ Open, 14 (5), e077440
DOI 10.1136/bmjopen-2023-077440, PubMed 38772592
Impacts of a health literacy-informed intervention in people with chronic obstructive pulmonary disease (COPD) on hospitalization, health literacy, self-management, quality of life, and health costs - A randomized controlled trial
Patient Educ Couns, 123, 108220
DOI 10.1016/j.pec.2024.108220, PubMed 38458089
Mental health and health-related quality of life in adolescents surgically treated for hypospadias in childhood
J Pediatr Urol (in press)
DOI 10.1016/j.jpurol.2024.09.031, PubMed 39490269
Effectiveness of a health communication intervention on health literacy in the first year following kidney transplantation - A randomized controlled study
Patient Educ Couns, 123, 108207
DOI 10.1016/j.pec.2024.108207, PubMed 38447477
Health literacy profiles in kidney transplanted patients: A cluster analysis
J Ren Care, 50 (4), 529-537
DOI 10.1111/jorc.12515, PubMed 39523862
Publications 2023
Sexual well-being and penile appearance in adolescents operated for distal hypospadias in childhood
J Pediatr Urol, 19 (3), 293.e1-293.e8
DOI 10.1016/j.jpurol.2023.03.001, PubMed 36935329
Health literacy and musculoskeletal disorders in adolescents: a scoping review
BMJ Open, 13 (6), e072753
DOI 10.1136/bmjopen-2023-072753, PubMed 37369418
Publications 2022
How to co-design a health literacy-informed intervention based on a needs assessment study in chronic obstructive pulmonary disease
BMJ Open, 12 (10), e063022
DOI 10.1136/bmjopen-2022-063022, PubMed 36302571
"A bit of everything": Health literacy interventions in chronic conditions - a systematic review
Patient Educ Couns, 105 (10), 2999-3016
DOI 10.1016/j.pec.2022.05.008, PubMed 35641366
Health-Related Quality of Life in Colorectal Cancer Patients Treated With Liver Transplantation Compared to Chemotherapy
Transpl Int, 35, 10404
DOI 10.3389/ti.2022.10404, PubMed 35707633
Definitions and measurement of health literacy in health and medicine research: a systematic review
BMJ Open, 12 (2), e056294
DOI 10.1136/bmjopen-2021-056294, PubMed 35165112
The importance of shared meaning-making for sustainable knowledge translation and health literacy
J Eval Clin Pract, 28 (5), 828-834
DOI 10.1111/jep.13690, PubMed 35466469
Publications 2021
Intervening on health literacy by knowledge translation processes in kidney transplantation: A feasibility study
J Ren Care, 48 (1), 60-68
DOI 10.1111/jorc.12379, PubMed 34053202
Comparing the use of patient-reported outcomes in clinical studies in Europe in 2008 and 2018: a literature review
Qual Life Res, 31 (3), 659-669
DOI 10.1007/s11136-021-02946-7, PubMed 34350566
Exploring patients' and health professionals' perspectives on health literacy needs in the context of chronic obstructive pulmonary disease
Chronic Illn, 18 (3), 549-561
DOI 10.1177/1742395321999441, PubMed 33705224
Changes in Health Literacy during the first year following a kidney transplantation: Using the Health Literacy Questionnaire
Patient Educ Couns, 104 (7), 1814-1822
DOI 10.1016/j.pec.2020.12.028, PubMed 33454146
High satisfaction on genital self-perception and sexual function in healthy Norwegian male adolescents
J Pediatr Urol, 17 (4), 555.e1-555.e8
DOI 10.1016/j.jpurol.2021.02.015, PubMed 33750647
Renal recipients' knowledge and self-efficacy during first year after implementing an evidence based educational intervention as routine care at the transplantation clinic
BMC Nephrol, 22 (1), 265
DOI 10.1186/s12882-021-02468-x, PubMed 34266414
Exploring health literacy needs in Chronic obstructive pulmonary disease (COPD): Associations between demographic, clinical variables, psychological well-being and health literacy
Heart Lung, 50 (3), 417-424
DOI 10.1016/j.hrtlng.2021.02.007, PubMed 33618148
Publications 2020
Processes of knowing in the translation of a health communication intervention for dialysis patients awaiting kidney transplantation
Patient Educ Couns, 104 (3), 517-523
DOI 10.1016/j.pec.2020.09.009, PubMed 33097359
Identifying Core Variables Associated With Health Literacy in Kidney Transplant Recipients
Prog Transplant, 30 (1), 38-47
DOI 10.1177/1526924819893285, PubMed 31918615
Reaching adulthood with Hirschsprung's disease: Patient experiences and recommendations for transitional care
J Pediatr Surg, 56 (2), 257-262
DOI 10.1016/j.jpedsurg.2020.05.015, PubMed 32586610
Working with patients suffering from chronic diseases can be a balancing act for health care professionals - a meta-synthesis of qualitative studies
BMC Health Serv Res, 20 (1), 98
DOI 10.1186/s12913-019-4826-2, PubMed 32039723
Relevant associations between alexithymia and health-literacy in persons with psoriasis
J Dermatolog Treat, 33 (1), 380-388
DOI 10.1080/09546634.2020.1756204, PubMed 32286098
Publications 2019
Implementing a tailored education programme: renal transplant recipients' experiences
J Ren Care, 45 (2), 111-119
DOI 10.1111/jorc.12273, PubMed 30920177
Does the Villalta scale capture the essence of postthrombotic syndrome? A qualitative study of patient experience and expert opinion
J Thromb Haemost, 17 (10), 1707-1714
DOI 10.1111/jth.14557, PubMed 31265193
Quality of life from a randomized trial of laparoscopic or open liver resection for colorectal liver metastases
Br J Surg, 106 (10), 1372-1380
DOI 10.1002/bjs.11227, PubMed 31322735
The trigger-information-response model: Exploring health literacy during the first six months following a kidney transplantation
PLoS One, 14 (10), e0223533
DOI 10.1371/journal.pone.0223533, PubMed 31609988
Evaluation of tools for annual capture of adherence to immunosuppressive medications after renal transplantation - a single-centre open prospective trial
Transpl Int, 32 (6), 614-625
DOI 10.1111/tri.13412, PubMed 30770608
A systematic review of quality of life research in medicine and health sciences
Qual Life Res, 28 (10), 2641-2650
DOI 10.1007/s11136-019-02214-9, PubMed 31187410
Intravenous Patient-controlled Analgesia Versus Thoracic Epidural Analgesia After Open Liver Surgery: A Prospective, Randomized, Controlled, Noninferiority Trial
Ann Surg, 270 (2), 193-199
DOI 10.1097/SLA.0000000000003209, PubMed 30676382
Directly observed therapy prior to ambulatory blood pressure measurement (DOT-HTN) in uncontrolled hypertensive patients - Effect on blood pressure, safety and patient perception
Blood Press, 28 (5), 327-335
DOI 10.1080/08037051.2019.1633907, PubMed 31250668
Health literacy: a new piece of the puzzle in psoriasis care? A cross-sectional study
Br J Dermatol, 180 (6), 1506-1516
DOI 10.1111/bjd.17595, PubMed 30597532
Associations between disease education, self-management support, and health literacy in psoriasis
J Dermatolog Treat, 32 (6), 603-609
DOI 10.1080/09546634.2019.1688233, PubMed 31692398
Publications 2018
Psychosocial and clinical outcomes of percutaneous versus surgical pulmonary valve implantation
Open Heart, 5 (1), e000758
DOI 10.1136/openhrt-2017-000758, PubMed 30018768
Going through laparoscopic liver resection in patients with colorectal liver metastases-A qualitative study
Nurs Open, 6 (2), 260-267
DOI 10.1002/nop2.206, PubMed 30918677
Long-term quality of life after liver transplantation for non-resectable colorectal metastases confined to the liver
BJS Open, 3 (2), 180-185
DOI 10.1002/bjs5.50116, PubMed 30957065
Laparoscopic Versus Open Resection for Colorectal Liver Metastases: The OSLO-COMET Randomized Controlled Trial
Ann Surg, 267 (2), 199-207
DOI 10.1097/SLA.0000000000002353, PubMed 28657937
How does a new patient education programme for renal recipients become situated and adapted when implemented in the daily teaching practice in a university hospital? An ethnographic observation study
BMJ Open, 8 (11), e023005
DOI 10.1136/bmjopen-2018-023005, PubMed 30478114
Improved Health-Related Quality of Life in Older Kidney Recipients 1 Year After Transplantation
Transplant Direct, 4 (4), e351
DOI 10.1097/TXD.0000000000000770, PubMed 29707622
Changes in health-related quality of life in older candidates waiting for kidney transplantation
Nephrology (Carlton), 23 (10), 948-956
DOI 10.1111/nep.13117, PubMed 28734131
Older kidney transplantation candidates' expectations of improvement in life and health following kidney transplantation: semistructured interviews with enlisted dialysis patients aged 65 years and older
BMJ Open, 8 (6), e021275
DOI 10.1136/bmjopen-2017-021275, PubMed 29934388
Implementation of a new patient education programme for renal transplant recipients
J Ren Care, 44 (2), 106-114
DOI 10.1111/jorc.12236, PubMed 29460501
Lack of cross-cultural validity of the Endometriosis Health Profile-30
J Endometr Pelvic Pain Disord, 10 (2), 107-115
DOI 10.1177/2284026518780638, PubMed 30320042
Health-related quality of life in women with endometriosis, compared with the general population and women with rheumatoid arthritis
Acta Obstet Gynecol Scand, 97 (11), 1339-1348
DOI 10.1111/aogs.13427, PubMed 30007080
Publications 2017
In-hospital cost comparison between percutaneous pulmonary valve implantation and surgery
Eur J Cardiothorac Surg, 51 (4), 747-753
DOI 10.1093/ejcts/ezw378, PubMed 28007875
Exploring nurse managers' perception of using the RAFAELA system as a management tool in a Norwegian hospital setting
Nurs Open, 5 (1), 77-83
DOI 10.1002/nop2.115, PubMed 29344398
Long-term experiences of Norwegian live kidney donors: qualitative in-depth interviews
BMJ Open, 7 (2), e014072
DOI 10.1136/bmjopen-2016-014072, PubMed 28209606
Relationships Between Clinical, Self-Reported, and Donation Specific Outcomes: A Prospective Follow-up Study 10 Years After Kidney Donation
Ann Transplant, 22, 148-155
DOI 10.12659/aot.902330, PubMed 28321111
Donation after circulatory death - an expanded opportunity for donation appreciated by families
J Crit Care, 43, 306-311
DOI 10.1016/j.jcrc.2017.09.002, PubMed 28968526
Publications 2016
Nursing intensity and costs of nurse staffing demonstrated by the RAFAELA system: liver vs. kidney transplant recipients
J Nurs Manag, 24 (6), 798-805
DOI 10.1111/jonm.12384, PubMed 27162168
Long-term, self-reported health outcomes in kidney donors
BMC Nephrol, 17, 8
DOI 10.1186/s12882-016-0221-y, PubMed 26754798
Publications 2015
Open versus laparoscopic liver resection for colorectal liver metastases (the Oslo-CoMet Study): study protocol for a randomized controlled trial
Trials, 16, 73
DOI 10.1186/s13063-015-0577-5, PubMed 25872027
A qualitative study of manager experiences using the RAFAELA system
Open Journal of Nursing, 5, 1224-1232
DOI 10.4236/ojn.2015.511109, PublikaID 225
Publications 2014
Testing reliability and validity of the Oulu Patient Classification instrument- the first step in evaluating the RAFAELA system in Norway
OJN, 4, 303-311
DOI 10.4236/ojn.2014.44035, PublikaID 210
Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
BMJ Open, 4 (7), e005102
DOI 10.1136/bmjopen-2014-005102, PubMed 25079930
The RAFAELA system: a workforce planning tool for nurse staffing and human resource management
Nurs Manag (Harrow), 21 (2), 30-6
DOI 10.7748/nm2014.04.21.2.30.e1199, PubMed 24779764
Publications 2012
Quality of life following liver transplantation in patients with liver metastases from colorectal carcinoma
Scand J Caring Sci, 26 (4), 713-9
DOI 10.1111/j.1471-6712.2012.00984.x, PubMed 22452269
Renal recipients' educational experiences in the early post-operative phase--a qualitative study
Scand J Caring Sci, 26 (4), 635-42
DOI 10.1111/j.1471-6712.2012.00972.x, PubMed 22417055
Limited evidence for the effectiveness of educational interventions for renal transplant recipients. Results from a systematic review of controlled clinical trials
Patient Educ Couns, 90 (2), 147-54
DOI 10.1016/j.pec.2012.10.020, PubMed 23199794
The effect of an educational intervention for renal recipients: a randomized controlled trial
Clin Transplant, 26 (3), E246-53
DOI 10.1111/j.1399-0012.2012.01666.x, PubMed 22686948
Patient experiences following liver transplantation due to liver metastases from colorectal cancer
Eur J Oncol Nurs, 17 (3), 269-74
DOI 10.1016/j.ejon.2012.07.004, PubMed 22901549
Publications 2010
Qualitative study of pain of patients with chronic obstructive pulmonary disease
Heart Lung, 39 (3), 226-34
DOI 10.1016/j.hrtlng.2009.08.002, PubMed 20457343
Patients' level of knowledge measured five days after kidney transplantation
Clin Transplant, 25 (4), 646-52
DOI 10.1111/j.1399-0012.2010.01355.x, PubMed 21077953
Publications 2009
Cost effectiveness of open versus laparoscopic living-donor nephrectomy
Transplantation, 87 (6), 831-8
DOI 10.1097/TP.0b013e318199cfc9, PubMed 19300185
Changes in cardiac and cognitive function and self-reported outcomes at one year after coronary artery bypass grafting
J Thorac Cardiovasc Surg, 140 (1), 122-8
DOI 10.1016/j.jtcvs.2009.10.034, PubMed 20018306
Publications 2008
Kreativitet, tålmodighet og ikke minst tid ...: læreres erfaring med å tilrettelegge leseopplæring for barn med autisme
M.H. Andersen, Oslo, 80 s.
BIBSYS 082749957
Patient-reported outcomes following living donor nephrectomy
In Series of dissertations submitted to the Faculty of Medicine, University of Oslo, Unipub, Oslo, no. 698, 1 b. (flere pag.)
BIBSYS 082868174
Publications 2007
Filigran: teknikk og metode
Fagbokforl., Bergen, 151 s.
BIBSYS 070857628, ISBN 978-82-450-0579-0
Chronikalische Strukturen zwischen Archiv und Kritik: Gottfried Arnolds Unpartiische Kirchen- und Ketzerhistorie
M. Andersen, [Tromsø], 70 s.
BIBSYS 102309531
Follow-up interviews of 12 living kidney donors one yr after open donor nephrectomy
Clin Transplant, 21 (6), 702-9
DOI 10.1111/j.1399-0012.2007.00726.x, PubMed 17988262
Quality of life after randomization to laparoscopic versus open living donor nephrectomy: long-term follow-up
Transplantation, 84 (1), 64-9
DOI 10.1097/01.tp.0000268071.63977.42, PubMed 17627239
Quality of life can both influence and be an outcome of general health perceptions after heart surgery
Health Qual Life Outcomes, 5, 27
DOI 10.1186/1477-7525-5-27, PubMed 17524152
Publications 2006
Postoperative pain and convalescence in living kidney donors-laparoscopic versus open donor nephrectomy: a randomized study
Am J Transplant, 6 (6), 1438-43
DOI 10.1111/j.1600-6143.2006.01301.x, PubMed 16686768
Clinical and radiologic outcome of off-pump coronary surgery at 12 months follow-up: a prospective randomized trial
Ann Thorac Surg, 81 (6), 2089-95
DOI 10.1016/j.athoracsur.2005.12.003, PubMed 16731135
Publications 2005
Living donors' experiences 1 wk after donating a kidney
Clin Transplant, 19 (1), 90-6
DOI 10.1111/j.1399-0012.2004.00304.x, PubMed 15659140
Patient-reported outcome after randomization to on-pump versus off-pump coronary artery surgery
Ann Thorac Surg, 79 (5), 1584-9
DOI 10.1016/j.athoracsur.2004.10.019, PubMed 15854937
Preoperative cerebral ischemic lesions predict physical health status after on-pump coronary artery bypass surgery
J Thorac Cardiovasc Surg, 130 (6), 1691-7
DOI 10.1016/j.jtcvs.2005.08.008, PubMed 16308017
Laparoscopic versus open living-donor nephrectomy: experiences from a prospective, randomized, single-center study focusing on donor safety
Transplantation, 79 (9), 1236-40
DOI 10.1097/01.tp.0000161669.49416.ba, PubMed 15880077
Publications 2002
Minigriser: foring, stell og opplæring
Eget, 40 s.
BIBSYS 022643214
Publications 1995
En studie av livskvalitet hos pasienter med leggsår i Bergen kommune
[Marit Helen Andersen], Bergen, 107, [32] bl.
BIBSYS 951640461
Publications 1991
Betydningen av psykoterapeutens indre arbeid for terapiprosessen
Universitetet, Oslo, III, 117 bl.
BIBSYS 910738238, ISBN 82-569-1062-3
Publications 1988
Runar vart 17 år
Det norske samlaget, Oslo, 103 s.
BIBSYS 892044411, ISBN 82-521-3281-2